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Diseases and Disorders
- Links pertaining to Ethics
 
Alert! Patients and laypersons looking for guidance among the target sources of this collection of links are strongly advised to review the information retrieved with their professional health care provider.
 
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Contents:
Bioethical Issues - Bioethics - Ethics, Institutional - Ethics, Professional - Humanism - Morals - Professional Misconduct -


      Bioethical Issues   
      Foundation for Biomedical Research [ethical use of animals in biomedical research] - (US)
      On Treating the Many to Benefit the Few [P O'Dowd] - Medicine and Health/Rhode Island, Jan 2001
      The Humane Education Network , and the Animal Protection Information Service (APIS) - (US)
      The New Zealand Anti-Vivisection Society , Inc.
      Center for Alternatives to Animal Testing - (US)
      The NORINA database - (NO)
      The Animal Rights Resource Site - via Envirolink

      Bioethics   
      Ethics in Science [V Hamner] - Virginia Tech Chemistry Department (US)
      Ethics on the World Wide Web [PM Lester] - School of Comm.,CSU/Fullerton (US)
      BioethicsWeb - The Wellcome Trust (UK)
      Applied Ethics Resources on WWW [C MacDonald] - U of British Columbia (CA)
      The Library , a link collection of Bioethics Organizations , and the DNA Patent Databse at J&R Kennedy Inst of Ethics, Georgetown Univ. (US)
      Bioethics Resources on the Web - NIH (US)
      Video Casts in Bioethics - NIH (US)
      Bioethics Today - (UK)
      Bioethics.net - U of Pennsylvania (US)
      Ethics in Medicine - Univ of Washington/School of Medicine (US)
      Bioethics Online Service , including a searchable collection of journal abstracts & other documents
      The US Nat'l Bioethics Advisory Commission
      European Information Network: Ethics in Medicine and Biotechnology
      CHB - Centre for Human Bioethics - Monash (AU)
      Joint Centre for Bioethics - U of Toronto (CA)
      The Nuffield Council on Bioethics - London (UK)
      Ethics Updates [ed. LH Hinman] - Univ of San Diego (US)
      Virtual Mentor [journal] - American Medical Association
      Bioethics Discussion Blog [M Bernstein] - Los Angeles (US)
      Biomedical Ethics - Newsletter of the European Network for Biomedical Ethics (DE)
      drze: German Reference Centre for Ethics in the Life Sciences - (DE)
      Science and Society [collection of fulltext articles] - Science Magazine '98
      Links zur Ethik in der Medizin (in German) - Univ. Wurzberg (DE)
      Health Ethics Today - Health Ethics C., University of Alberta (CA)
      ELSI - Ethical, Legal and Social Issues - Lawrence Berkeley Nat'l Laboratory (US)
      The Ethics Center for Engineering & Science - Case Western Reserve Univ

      Ethics, Institutional   
      Hospital Ethics Handbook - U of Kansas, Medical C. (US)
      Conflict of Interest Information and Resources - NIH (US)
      Human Genome Project Information - Oak Ridge Nat'l Lab (US)
      Ethical, Legal, Social Implications of the Human Genome Project [links ; D Collins] - KUMC
      ETHEX: Ethical Scenarios Forum - Exploratorium, San Francisco (US)
      Human Gene Testing [educ.] - Beyond Discovery/NAS (US)
      HumGen - Legal, Social and Ethical Aspects of Human Genetics - (CA)
      Consent & Confidentiality in Genetic Practice - Clinical Genetics Society (UK)
      Consent in Genetic Research in Iceland [P Hauksson] - Language Perils, Aug 2001/MultiTech Comm.
      Ethical issues With Genetic Testing in Pediatrics [policy statement] - AAP (US)
      The UK Biobank project
      Genetics and Ethics [B Williams-Jones] - (CA)
      GeneTests*GeneClinics (incl. GeneReviews)
      Bioethics at UNESCO
      On the Ethics of Stem Cell Research [links] - StemCells (CA)
      Stem Cell Ethics - Stem Cell Network (CA)
      First Time Cancer Test For Embryo Raises Ethical Questions , Jun '98 - AAP, via News on Genetic Engineering (DE)
      Zentrum für Medizinische Ethik (ZME) [partly in English] - Ruhr-Univ. Bochum (DE)
      Centro di BioEthica [in Italian] - Univ. Cattolica Roma (IT)
      Centre for Bioethics - Uppsala Univ., Karolinska Univ. (SE)
      Neuroethics - Univ of Pennsylvania (US)
      Research and Projects in Neuroethics at Stanford School of Medicine (US)
      Neuroethical issues - The US President's Council on Bioethics
      UB Center for Clinical Ethics & Humanities in Health Care - Univ of Buffalo (US)
      Canadian Applied Ethics Research Net - University of British Columbia (CA)
      Guidelines for Good Epidemiology Practices for Drugs, Devices and Vaccine Research - Chem Manufact. Assoc. Epidemiology Task Group
      MedErrors.com
      The Health Law Resource
      Derecho Medico [JC Galán] - (ES)
      American Counseling Association

      Ethics, Professional   
      The Physician's Charter - via MedWord
      About AMA's Code of Medical Ethics , and the Declaration of Professional Responsibility
      Patients' Bill of Rights Act - US Senate 1998
      Patient Rights , Grohol's Mental Health Page - (US)
      On Principles in Bioethics - Univ of Washington School of Medicine
      Issues in Medical Ethics , a panel discussion re medical professionalism - Mt Sinai J of Medicine, Nov 2002
      Ethics in Obstetrics and Gynecology - American College of Obstetricians and Gynecologists
      Ethical, legal and social aspects of genetic testing - European Commission 2004
      Exposed: Medical Privacy (in the US) - Washington Post (US)
      An Ethics Manual, 4th ed. - Americal Coll. of Physicians
      Links to Medical Records, Privacy & Confidentiality resources [WL Manning]
      Full text articles on Confidentiality - BMJ (UK)
      Some Notes on Ethics in Emergency Medicine [Isaacs & McNamara] - e-Medicine (US)
      About the Home Care/Hospice Patient's Rights - NAHC (US)
      Opinions on Informed Consent - BMJ (UK)
      When Ethics Leans on Jargon Patients Often Denied Choices [J La Puma] - Managed care, Jul 1999
      A HyperGUIDE to the Mental Health Act [N Turner] - (UK)
      Managed Health Care and Malpractice in Forensic Psychiatry
      WMA Recommendations Guiding Pysicians In Biomedical Research Involving Humans [Helsinki June '64]
      Medicine and International Law - BMJ Aug '99
      Nat'l Organization of Physicians Who Care - San Antonio, TX (US)
      UN principles for health personnel , Dec '82
      Union of Concerned Scientists - (US)
      Bioethics for Clinicians [article series] - CMAJ (CA)
      The Harvard Risk Management Foundation Library
      Guidelines for the Conduct of Research Involving Human Subjects at NIH (US)
      Declaration of Helsinki should be strengthened [ethical debate] - BMJ, Aug '00
      Guidelines for Ethics related issues from the American Psychological Association
      About the MKULTRA mind control program - Web-Dictionary.org
      The value of life: who decides and how? [sample chapter; Schwartz, Preece and Hendry] - Medical Ethics, a Case-Based Approach
      About The Milgram Experiment , and The Perils of Obedience [S Milgram]
      Arbeitskreis "Ärtze und Juristen" [in German] - University of Düsseldorf (DE)
      The Chemist's Code of Conduct - Am. Chem. Soc. (US)
      Clinical Unit in Ethics and Health Law - Newcastle University (AU)
      The Health Law (US) Resource [WL Manning]
      Doctors Against Handgun Injury - NYAM (US)
      Evidence-based Ethics and the Care of Premature Infants [J Tyson] - Future of Children
      On Sexual Relationships with Patients [MJ Mehlman] - Cyberrounds
      About Fundamental Elements of the Patient-Physician Relationship - AMA (US)
      Communicating Bad News - AMA (US)
      Decisions at Life's End - N.Y. (US)
      SCOPE - Science Controversies On-line - (US)
      On Human Error in Medicine [Senders and Green] - Visual Expert
      Human Error in Medicine - ExpertLaw (US)
      Racist Society, Racist Science [RM Young] - (UK)
      Two views of The Bell Curve
      A collection of Ethics Case Studies for discussion [LM Hinman] - Ethics Updates
      Documents in Medical Ethics - Nat'l Health & Medical Research Council, Canberra (AU)

      Humanism   
      The Human Rights Library at the University of Minnesota (US)
      Human Rights Internet - (CA)
      Survivors (of Torture) International
      Doctors urged to oppose non-lethal weapons - RTna Jul '97
      Médecins Sans Frontières
      Links to Human Rights Sites ,
      Human Rights Watch
      Amnesty International and the Swedish Chapter
      Humanitarian Issues - BMJ Nov '97
      Physicians for Human Rights
      Health and Human Rights Advocacy - Francois-Xavier Bagnoud C./Harvard (US)
      Medical Humanities - New York Univ. (US)

      Morals   
      On The Biological Basis of Morality [EO Wilson] - The Atlantic, Apr 1998
      Society, Religion and Technology Project - Church of Scotland (UK)
      Virtual Office for History, Theory and Ethics in Medicine [AW Bauer] - Heidelberg (DE)
      Kurzes Lehrbuch der Ethik in der Medizin [H Bader] - (DE)
      An Ethical Debate: Should Older Women be Offered In Vitro Fertilization? - BMJ (UK)
      Prenatal Diagnosis: Spiritual challenges in genetic testing and counseling [M Teller White] - Park Ridge Center
      Critical documents on Male and Female Circumcision - NOHARMM
      On Female Genital Mutilation in Britain - BMJ (UK)
      Biblical Medical Ethics , Inc. [E Payne] - (US)
      Buddhism and Medical Ethics: A Bibliographic Introduction [Hughes & Keown] - J of Buddhist Ethics (UK)
      Nat'l Institute of Judaism & Medicine - (US)
      Judaism and Medicine on the Web [links]
      On Physician-Assisted Suicide Under Jewish Law [SH Resnicoff]
      Does my religion approve of organ donation? - TransWeb
      The Willed Body Program at Univ. of Washington/School of Medicine (US)
      About Xenotransplantation - SnapShots/NIH (US)
      Face-off for facial transplants [A Caplan] - MSNBC News 2004
      Surgeon (in Germany) suspended in transplant row - BMJ, May 2003
      Brain 'theft' laws promised - BBC, May 2003 (UK)
      International traffic in human organs [V Ram] - Frontline, Mar/Apr 2002
      The New Cannibalism [N Scheper-Hughes] from Organs Watch
      Why not allow organ trading? [C Hogg] - BBC (UK)
      Selling a kidney fails to rescue Indians from poverty [comment on an article; D Josefson] - StudentBMJ, Nov 2002
      Myths about Organ Donation - Readers Digest
      Ethical Issues Related to Abortion - Ethics Updates
      Abortion-related issues from NARAL, Pro-Choice America, and articles advocating the 'ProLife' view by R Alcorn
      On Practicing Procedures on the Newly Dead - sample chapter from Ethics in Emergency Medicine [Iserson et al.] - Galen Press
      Cardiopulmonary resuscitation? When to start, when to stop. [PG Brindley] - Critical Care Rounds, 6/2003 (CA)
      Ethical Musings [L Martin]
      On Physician-Assisted Suicide [A Boyd] - American Medical Student Association
      Euthanasia World Directory
      Policy document on Do-Not-Resuscitate at Cleveland Clinic Foundation (US)
      Policy Statement on Assisted Suicide by the Am Foundation for Suicide Prevention
      "When Death Is Sought: Assisted Suicide & Euthanasia .. " [1994, 1997] - N Y State Task Force on Life & Law (US)
      About Derek Humphrey and the Hemlock Society - (US)
      The Doctor's Defense [RHS Tur] - Mt Sinai J of Medicine, Oct 2002
      Birth of the Universal Declaration on the Human Genome and Human Rights - UNESCO, 1999
      The Genetic Privacy Act & Commentary - US Department of Energy (US)
      Ethical Issues Related to Reproductive Technologies and Bioethics [L Hinman] - Ethics Updates
      "Do it yourself" paternity testing [S Arie] - BMJ, May 2004
      Clonig Fact Sheet - Human Genome Project (US)
      Cloning from Adult Vertebrate Cells , small graphic [Alberts et al.] - via GeneTech a brief Overview of Cloning Techniques - ReligiousTolerance.org, and on Human Cloning and Genetic Modification - Assoc. of Reproductive Health Professionals (US)
      Who will clone? - How Stuff Works
      Scientific and Medical Aspects of Human Reproductive Cloning - NAP 2002
      Doctor 'implants cloned embryo' - BBC News, Jan 2004
      The Human Cloning Foundation [in support of human cloning] and the Reproductive Cloning Network
      On Human Cloning [position statement by Australian Acad of Science] - via NOVA (AU)
      Somatic Cell Nuclear Transfer - Wikipedia
      Biothechnology Issues & Ethics - The Biotech Chronicles (US)
      Abolish Death Penalty - Amnesty, USA section
      Death Penalty Information & Resources [J Thomas] (US)
      Death Penalty Information Center - Washington, DC (US)
      Pro-Death Penalty .Com - (US)
      Some Execution Techniques - Am. Police Hall of Fame & Museum, FL (US)
      Some Execution Stories from Florida [JJ Maloney] - CrimeMagazine
      Who Uses Lethal injection? - How Stuff Works, and Lethal injection: a stain on the face of medicine [JI Groner] - BMJ, Nov 2002
      About The Validity And Reliability Of Polygraph Testing - APA (US)

      Professional Misconduct   
      Unprofessional Practices , Grohol's Mental Health Page - TransImage (US)
      Professional Misconduct & Physician Discipline - N Y State Dept of Health (US)
      The Death of an Athlete: A Case of Ethics, Malpractice and Concealment [student paper in Neurochemistry] - Berkeley (US)
      On Malpractice and Medical Error [J Comerford; video lecture] - Univ of Connecticut, School of Medicine (US)
      Series of errors led to 300 unnecessary mastectomies - BMJ, Mar 2000
      The Ethical Conduct of Scientific Research [R King] - Mill Hill Essays '98
      American Iatrogenic Assoc.
      Action for Victims of Medical Accidents
      Medicine & Law - Malpractice - 'Lectric Law Library (US).
      War Crimes and Medical Science [J Leaning] - BMJ Dec '96 (UK)
      About Ishii Shiro, unit 731, and Japanese germ warfare research
      About Doctors at Auschwitz - The Ethical Spectacle
      Medical experimentation at Auschwitz and about Zyklon B - The Nizkor Project
      Nuremberg Doctors' Trial - BMJ Dec '96
      The Doctors' Trial at Nuremberg 1946 - US Holocaust Memorial Museum
      The Doctors of the Holocaust [B Newman]
      The Nuremberg Doctors' Trial in Historical Context [MR Marrus] - Bulletin of the History of Medicine, 1999
      The Doctors of the Holocaust [B Newman] - Cybrary of the Holocaust
      The Criminal Proceedings Against 23 German Physicians & Administrators 1946 - US Holocaust Memorial Museum
      Outcome of the Doctors Trial (dec 1946 - aug 1947)
      Brief Note about Joseph Mengele - Victims of Mengele, and about Miklos Nyiszli - The Holocaust (DK)
      'Mengele's children': The Twins of Auschwitz [J Rosenberg]
      Mad Science and Criminal Medicine [R Brueggemann]
      On The Ethics of Using Medical Data from Nazi Experiments [BC Cohen]
      Nazi Medicine and Public Health Policy [RN Proctor]
      About Dr. Karl Brandt and the T-4 Euthanasia Program - Wikipedia
      Eugenics Watch
      Image Archive on the American Eugenics Movement - Cold Spring Harbor Lab. (US)
      About the movie Homo Sapiens 1900 , directed by P Cohen
      The Troubling Legacy of the Tuskegee Syphilis Study
      Harold Fred Shipman: An account of the murderous GP of Hyde [G England] - (UK)
      Resources on Nonconsensual Human Experimentation [S Hale]
      The (US) National Council Against Health Fraud
      Quack Watch [S Barrett]
      Healthcare Reality Check On-Line
      The Royal Liverpool Children's Inquiry Report - (UK)

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Karolinska Institutet University Library, Stockholm, Sweden
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